One week ago today we got "the call" that they might have a liver donor for Hannah. It still amazes me to this day how fast that all went down, and once again our lives changed in an instant. This journey that we are on with Hannah had turned us down a whole new road. One that is actually filled with hope but at the same time so terrifying and unpredictable. I still thank God everyday for giving Hannah this chance at a new and healthy life. We can only continue to pray that God's plan for Hannah is a glorious one with more ups than downs in her life to come.
Today is a new day which in hopes that means a new beginning. I did not do a blog post last night due to the fact that not much had changed from the last post. Last night Hannah seemed to start her climb back up the hill. She had a decent night with no spikes in temperature. She still has to wear the breathing mask but that has become more precautionary just to keep her lungs healthy until her surgery on Monday. They were entertaining with the idea of bringing her back to the OR today, but since she had such a good night they felt it was okay to wait one more day until the full staff was here. Of course, we agreed. We wanted everyone to be present that should if they need any extra help for whatever reason. Her breathing seems to be a little more under control and her heart rate has stabilized as well. They gave her a little extra fluids yesterday because they thought she may be a little dehydrated along with everything else.
Overall today Hannah has been doing well. Uneventful so that is always good. She seems to be comfortable but very very bored!! We hung some toys from an overhead light and she will just start to kick them. It is her way of being playful! I am hoping when they take her back to the OR tomorrow they will be able to extubate her and not have to put that mask back on. We will just have to wait and see how she does. She is also definitely a lot more awake and aware. She is getting very mad at the medical staff again when they touch her so we know she must be feeling better! :)
For now, the plan is to take her back to the OR some time tomorrow, take one more look, and hopefully close her up. Let's hope and pray it is her last surgery. I would like to say ever, but right now I will just say for awhile!! They never were able to track down any infection. All her cultures and tests were coming back negative thus far so they took her off contact precautions. Her white blood cell count remains elevated, but is slowly trending down, so they are still treating her with antibiotics.
I would like to think we are back on the mend but every time we seem to get our hopes up, things come crashing down. I never say a day is necessarily good because for right now it is considered stable and decent. I have learned to choose my words wisely and not get to ahead of myself. I truly take things hour by hour because things seem to change around here in a flip of a switch. I just hope I can keep her as good as Daddy did last night :) That is if these people stop coming in here and making her mad!!!
Well, this is certainly a Mother's Day I will never forget. To spend it here with my daughter as she fights for her new life, shows me a whole new perspective on motherhood. It is absolutely amazing what something like this can teach you about life and how you should live it. This moment will forever be engraved into my heart. Her donor family gave me the best mother's day gift I could have ever asked for. It pains me to think how her donor's mother is mourning the lost of her child at this moment. I hope and pray that God can give her some sense of peace in the fact that the loss of her child gave life to our little girl. I would like to ask all of you to say an extra prayer for that mother tonight as this will be a mother's day she will never forget either.
Your posts are so insightful. We keep you all in prayer. You are so right in praying for the doner family. God's plans are so unpredictable...such is the joy of life.
ReplyDeleteLove to Hannah! Happy Mother's Day, Casey!
-Aunt Julie
I am always so amazed when I read your updates.......the strength in your comments is so wonderful and this is where Hannah gets her strength........from Mom, Dad and seeing her big brother Jacob...........our prayers are constant....24/7.................luv to all of you..Aunt Sandy
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