Keep on moving forward.....

We had Hannah's clinic appointment today and while her labs looked pretty decent the rest of the appointment did not go as planned.  Since they have recently discovered that the portal vein is now clotted off, they can't tell from the scans how extensive the clot extends.  I believe in most patients you can see a beginning and an end, but unfortunately from the scans they have they aren't sure where the clot actually ends.  Once again, we will need to do more testing in hopes to find out that it is in fact not as long as the scans suggest.  We wish this just required a quick test such as an MRI or a CT but unfortunately she will need a procedure done.  It will be done in Interventional Radiology where they will go in and get a better look at what they are dealing with, and while they are in there, hoping to remove the clot and place a stent.  If they can in fact place a stent that will regain some blood flow through the portal vein to the liver.  It is only a temporary fix but hopefully they can salvage her portal vein and in turn make the transplant less complex. The procedure is schedule for Wednesday at 930AM.  The procedure should only take about an hour and once he is done we should get an answer right away about which road of transplant they will take on Hannah.  A more complex or straight forward, if there is such a thing!!  In addition to this procedure, they will be writing the board to request exception points to move Hannah up on the transplant list.  They will most likely complete that after the procedure on Wednesday to see how many points they request per the outcome of the procedure.   Our transplant surgeon has total faith that this will benefit Hannah if they get this stent placed so we are putting all our trust in him that he knows what is best for Hannah.

After today's appointment, we have quickly realized we have no control over what Hannah's situation or outcome will be.  Our hearts tells us it will work out, but it is going to be a really tough and bumpy ride until we get to where we want to be. We will continue to be strong advocate's for Hannah but ultimately her fate lies in the hands of God.   I wish I had more uplifting blog posts but for the time being "it is what it is."  One day I hope to walk in that hospital and get some good news, and you all will be the first to know!!

Don't forget that the Art for the Cure fundraiser is on Friday!  You can buy tickets at the door if you are not sure until last minute if you can make it.  They are $25 a person and it includes dinner, dessert, and two drink tickets and goes from 7-11.  It is at the Lemp Mansion Ballroom which is in a separate building from the restaurant.  They will also be having a silent auction, goldfish races, music, and much more.  Greg and I will be attending as well!!

Well, I hope the next blog post is a better one and we get some good news for a change about the results of the procedure.  If you could all say an extra prayer for Hannah at 930AM on Wednesday.  She needs all the prayers she can get right now!!