Here we are Day 4 of our hospital stay and we still have no indication of how much longer we will be here:( Yesterday Hannah spiked another fever in the morning and is continuing to not eat much. Her belly is still very large and she was very uncomfortable. Once again I voiced my concern, and said something needed to be done! When the doctors came in and rounded on her, they finally decided to do a weight check since they hadn't since Thursday. She had gained a whole pound from Thursday evening to Saturday! They decided to repeat the ultrasound or do a CT scan. I told the doctor that I wanted the CT scan because that will look at everything, and then they can gather so much more info. The CT scan did show some fluid and her left kidney is mildly enlarged which indicated the infection got in there as well. The poor girl, it is just one more thing! I was told though the antibiotic she is on will get rid of it and shouldn't cause any damage.
After getting these results, last night Greg stayed with Hannah, and I went home to get some much needed rest. He did a great job and got things done! I knew he would:) The doctors decided to give her some Albumin and a Lasix flush, which both should help pull the fluid off of her belly. She got through the night without spiking a real high temperature. I believe the highest it got was 100. So I think that is a good sign that she might be turning a corner on the infection side of things. When I showed up this morning I wasn't greeted with a smile but a lunge toward me for me to hold her! Finally after a few minutes we got a smile. It was so nice to see that smile again! She is still not back to her old self but she is a little more bright eyed and babblely.
As of today, her belly is still quite large, and her weight was up just a bit. Infection wise she hadn't spike any temps. Until Now!! As writing this I heard her whimpering in her sleep, which she does when her fever goes up. I just took her temp and she is now up to 101.5 :( This poor girl just can't get cut a break!! Every time we feel like we are taking two steps forward, we take a step back! They also cut out the ibuprofen so now she can only have tylenol. Hopefully it does the trick!
It is becoming so hard to write these blog posts because every hour things change with Hannah. Like I said yesterday every moment is like a roller coaster ride! I left for a little bit today to go see Jacob, which I have not seen since Thursday morning! I couldn't be away from him for another day! When I walked in the house I was greeted with a big smile and a huge and long hug! I just wanted to cry! Peter Matthew, the newest member to family (Megan and Rick's first little boy) was baptized this morning. Greg had the honor and privilege to be his Godfather. I met up with the rest of the family at Megan and Rick's house to hang out for a while. My mother came here to the hospital and sat with Hannah while we were celebrating Peter. It was so hard to be away from Hannah, but at the same time so hard to be at the party not having my whole family with me. I thought it would be good to get out, which it was, but it was so hard at the same time. I realized very quickly how our life is so upside down right now. On top of that I had a really hard time leaving Jacob:(
When I got back to the hospital, my mom and Hannah greeted me at the elevators on the floor. She was so bright eyed and the happiest I have seen her in quite a while. My mom told me how good she did while I was gone. She ate a 4 ounce bottle and enjoyed walking around and sitting out in the hallway on my mom's lap just watching everyone. The nurse and my mom said she was showing so much personality and was "talking" a lot. It was so nice to hear she might be turning a corner. I am just going to keep my fingers crossed because like I said every time we take two steps forward we then take a step back.
The only thing I know about tomorrow is another ultrasound is scheduled for Hannah. They want to check the main vein in her liver called the portal vein. The CT scan didn't get a good picture of it, so they want to make sure it is still of normal size, not scarred down, or starting to clot off. This is very important, so keep your prayers and thoughts with Hannah that she gets good results!! I am also hoping tomorrow to see some people from the transplant team to start working on a plan for getting Hannah back home. I worry of spending to much time here becomes more of a con than a pro for Hannah. I don't want her to contract anything else!
I will continue to keep you all posted and let you know what tomorrow brings for our sweet little girl!!
We're keeping you all in our thoughts and prayers.
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