Halloween
Dr. Jacob Onder & Hannah "The Owl"
(I wonder where Jacob came up with that idea for a costume;) )
The support site I have used since Hannah got diagnosed encourages us to every Wednesday post some good news or something we are thankful for since most of the time we are sharing our concerns, fears, and troubles. Usually we are looking for any piece of advice that puts our mind to rest even if it is just for a few short moments. There is always so much pain and sorrow on these sites and it is so hard not to get wrapped up in it all. I went on this site tonight to post my Wonderful Wednesday news about Hannah, and come to find out another little boy is close to losing in the fight for his life. At that moment, I can not explain to you how blessed I felt to have Hannah here at home with me. My heart breaks for this family and I pray that this little boy can continue to put up a fight. I proceeded on to post our Wonderful Wednesday news, and here it is.....
Hannah is to this day 6 months post transplant! YEAH!!! I can not believe it has been 6 months already. I have been very anxious lately as cold and flu season is fast approaching and that Hannah has been doing so good, it is almost eerie good! It is so easy to be optimistic as you look at her and see how far she is come, but at the same time it is so hard because at any time those labs could show something we do not want to see! Today we had labs done and her clinic appointment. Well, I am happy to report that Hannah is doing absolutely fabulous right now. Her labs look almost near perfect, shows NO signs of rejection, and she is continuing to grow! She is up to 17lbs 14ounces, 29 inches long, and is finally on the growth charts. It is only for her length but hey we will take it! And can you believe it the good news continues....... not only is she doing great, we got to take away 3, yes I said "3" medications today! I can't tell you how happy that makes Mommy:) One being an immunosupressant, so she is down to just her Prograf which she will take for "life" and two others that could go away at a year post transplant. She continues to amaze us everyday with her strength and determination. She is even starting to take a step here and there. We are thinking and hoping that by Christmas she might even be right there running along with all the other kids:)
It is a little haunting to think how we were feeling exactly 6 months ago today. I will never forget hovering in that corner of her hospital room terrified for my little girl as every doctor and nurse did everything they possibly could to keep her comfortable and ALIVE. As I reflect back, I was so terrified, and totally numb. Everything was out of my control and was in God's hands at that point. To physically sit there and watch your own and child's life spiral out of control is a tough and needless to say eye opening experience. One that I could never fully explain. I continued though to have faith, hope, and God on my side. I watched God as he guided that team of doctors and nurses to make sure in 6 months from then I had my little girl home in our arms where she belongs. So tonight we aren't celebrating an election loss or win. We are celebrating what truly matters.... LIFE. Because really is there anything more important than that?!? I know it is cliche, but in our household it is what matters the most right now! Along with Hannah's good news, we celebrated another amazing gift of life in our family. Her big brother Jacob turned 4 on Tuesday! Here is to many more healthy years ahead for my kiddos:)
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